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Notre protocole TSA
Recueil de données
Des données médicales et réponses aux questionnaires de dépistage (M-CHAT, SCQ) sont collectés via le logiciel Neddie. Des comportements de vie quotidienne peuvent être observés par téléconsultation (grâce au matériel connecté Mini TableTop) pour montrer aux cliniciens les situations problématiques.
Analyse du dossier patient
Le dossier du patient est analysé par un psychiatre spécialisé en TSA (Trouble du Spectre de l'Autisme). Une discussion clinique a lieu avec l’équipe locale et le psychiatre spécialisé issu du réseau Teladoc Health.
Téléconsultation(s)
Une ou plusieurs téléconsultations vidéo sont organisées avec le psychiatre, le patient, sa famille, le(s) référent(s) local(aux). Les téléconsultations sont rendues possibles grâce au logiciel Neddie.
Rapport de diagnostic
À l’issue du protocole, un rapport est émis et transmis dans le DMP avec une proposition de soins qui peut être supervisée ultérieurement en télémédecine. Les référents locaux sont avisés et ont pour mission d'expliquer pas à pas les prochaines étapes aux patients.
Bases scientifiques
Télémédecine et troubles du spectre de l’autisme de l’enfant et de l’adolescent : guide théorique et pratiqueTélémédecine et troubles du spectre de l’autisme de l’enfant et de l’adolescent : guide théorique et pratique
Catherine Doyen, Virginie Goupil, Eric Desailly, Marie Joelle Oreve, Kelley Kaye
Le développement de la télémédecine en psychiatrie de l’enfant et de l’adolescent s’affirme comme un besoin au regard de la rareté croissante des professionnels de santé mentale. En France, un cadre légal définit quatre modalités de pratique et la téléconsultation dans le domaine des troubles du spectre de l’autisme a démontré sa faisabilité, la littérature suggérant de nouvelles opportunités d’évaluation avec des instruments standardisés et validés. Le développement de programmes de télémédecine en France dans le champ des troubles du spectre de l’autisme pourrait ainsi compléter et faciliter les parcours de soins des personnes.
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Brief Report: Preliminary Feasibility of the TEDI: A Novel Parent-Administered Telehealth Assessment for Autism Spectrum Disorder Symptoms in the First Year of Life
Meagan R Talbott, Sarah Dufek, Lonnie Zwaigenbaum, Susan Bryson, Jessica Brian, Isabel M Smith, Sally J Rogers
Families with early concerns about infant symptoms of ASD have limited access to experienced professionals for screening and guidance. Telehealth has been used to reduce access disparities in other pediatric populations and has shown promise in parent-implemented interventions for ASD. We investigated the feasibility of a novel level-2 telehealth assessment of infants' early social communication and ASD symptoms, the Telehealth Evaluation of Development for Infants (TEDI).
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Identifying Autism with a Brief and Low-Cost Screening Instrument-OERA: Construct Validity, Invariance Testing, and Agreement Between Judges
Cristiane S Paula, Graccielle Rodrigues Cunha, Daniela Bordini, Decio Brunoni, Ana Claudia Moya, Cleonice Alves Bosa, Jair J Mari, Hugo Cogo-Moreira
Simple and low-cost observational-tools to detect symptoms of Autism Spectrum Disorder (ASD) are still necessary. The OERA is a new assessment tool to screen children eliciting observable behaviors with no substantial knowledge on ASD required. The sample was 99 children aged 3-10: 76 with ASD and 23 without ASD (11/23 had intellectual disability).
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Preliminary Evidence for the Integrated Systems Using Telemedicine
R Matthew Reese, Matthew J Braun, Sarah Hoffmeier, Lee Stickle, Louann Rinner, Catherine Smith, Kathryn Ellerbeck, Rene Jamison, Maura Wendland, Lindsey Jarrett, Megan Hadorn
Autism affects as many as 1 in 68 children in the United States. Early identification and access to intervention services promote improved outcomes for children with autism and other developmental delays. Children living in rural and underserved areas have limited access to such services and are diagnosed later than those living more suburban and urban areas. Our Integrated Systems Using Telemedicine (ISUT) Model uses a cost-effective method for families to access diagnostic and other specialty care through telemedicine. This model links families, trained early intervention providers and educators, and university-based medical professionals.
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Investigating the accuracy of a novel telehealth diagnostic approach for autism spectrum disorder
Christopher J Smith, Agata Rozga, Nicole Matthews, Ron Oberleitner, Nazneen Nazneen, Gregory Abowd
Research indicates that a substantial amount of time elapses between parents' first concerns about their child's development and a formal diagnosis of autism spectrum disorder (ASD). Telehealth presents an opportunity to expedite the diagnostic process. This project compared a novel telehealth diagnostic approach that utilizes clinically guided in-home video recordings to the gold standard in-person diagnostic assessment. Participants included 40 families seeking an ASD evaluation for their child and 11 families of typically developing children.
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Use of telehealth for facilitating the diagnostic assessment of Autism Spectrum Disorder (ASD): A scoping review
Manahil Alfuraydan, Jodie Croxall, Lisa Hurt, Mike Kerr, Sinead Brophy
There is a significant delay between seeking help and a confirmed diagnosis of Autism Spectrum Disorder (ASD). This delay can lead to poor outcomes for both the families and individuals. Telehealth potentially offers a way of improving the diagnostic pathway for ASD. We conducted a scoping review examining which telehealth approaches are used in the diagnosis and assessment of ASD in children and adults, whether they are feasible and acceptable, and how they compare with face-to-face diagnosis and assessment methods.
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Telehealth Approaches to Care Coordination in Autism Spectrum Disorder
Dasha Solomon, Neelkamal Soares
This chapter examines the current literature regarding the use of telehealth, and its potential benefits and limitations for diagnosis, treatment, and coordination of care for children diagnosed with Autism Spectrum Disorder (ASD). Barriers to access drive the need to have telehealth as a modality for delivering evidence-based diagnostic and therapeutic processes, which can be impactful in improving developmental...
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